The Delaware Health Information Network, a statewide health information exchange, is implementing an end-of-life registry that captures medical orders that describe the scope of treatment planned for a terminally ill person.


The goal is help providers better understand patients’ wishes on how they want to die, and whether treatment should be continued—and under which circumstances—or whether treatment should be ceased. The registry was authorized by Delaware’s Legislature in 2016 and follows a trend in several other states of translating a patient’s wishes into a medical order.


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